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CANCER PINK CLASHES WITH RAINBOW FLAG
National LGBT
Cancer Network Speaks Out
A new
Study Finds that Cancer-Pink Clashes with the Rainbow Flag.
Each
October, the autumn colors are hidden beyond a wall of pink, as
well-meaning health care workers and activists
decorate their scrubs and offices in cancer-pink ribbons. In addition,
fundraising walks, runs and breast cancer educational programs will take
place in cities across the U.S.
“Somehow, the country has collapsed all meaningful support for breast
cancer survivors into the Wearing of the Pink.”, said Liz Margolies,
LCSW, the executive director of the National LGBT Cancer Network, “And
this one-color-fits-all approach does not meet the needs of lesbian and
transgender breast cancer survivors.”
Margolies is the co-investigator, along with Marilyn Smith-Stoner,
nursing professor at California State University, San Bernadino, of a
recent national study of lesbian, gay, bisexual and transgender cancer
survivors. Their findings suggest that supporters of breast cancer
awareness month should “Pause before they Pink”.
The
study, “The Experience of Being Diagnosed with Cancer by Lesbian, Gay,
Bisexual, Transgender People” reported that many LGBT cancer survivors
in the study reacted negatively to the feminization of breast cancer
care. “Many lesbians and transgender men are offended by the values
inherent in the pinking of breast cancer. It becomes a source of further
isolation and may diminish the caring relationship”, says Dr.
Smith-Stoner.
As
one responded phrased it: "Reproductive cancers are loaded with gender
issues. For example, not all women (or men) with breast cancer want to
wear pink. I think over-feminizing BC is problematic."
Another wrote: “There's a hell of a lot of emphasis in breast cancer
awareness about helping women look stereotypically feminine. I
personally have no interest in breast reconstruction, and it irked me
that I was automatically referred to a plastic surgeon at the time of my
mastectomy.”
A
lesbian survivor wrote: “Being a Lesbian facing having your breasts cut
off, it would be good if they did not assume you were concerned about
how "men" would see you in the future!”
While the military has finally ended the Don’t Ask Don’t Tell policy,
healthcare workers have not yet done so. LGBT patients are rarely asked
about their gender identity and sexual orientation. When they are,
clinicians have not been trained to respond appropriately. Few are
equipped to discuss the impact of cancer on LGBT sexuality and
relationships.
“Our
research highlights the critical need to inquire about patients’ sexual
orientation and gender identity and to include “families of choice” in
treatment. You cannot offer significant and tailored support
otherwise.”, said Margolies.
LGBT
cancer survivors are often more isolated and frightened than their
heterosexual counterparts.
As
one respondent wrote: “I was never out during the whole process to
anyone. I had no one in the hospital or doctor visit with me for fear of
my gayness being discovered and then the doctors "accidentally" not
removing all the cancer lesions. It would have been nice to have my
partner with me. My family refused to come and told me they hoped I
would die from the cancer.”
As
another said: “My support system, many of whom are trans and gender
variant people, were made to feel very uncomfortable by my doctors and
medical staff due to disregard for pronoun use, sideways glances, and
overall awkward responses.”
One
respondent summed it up well, “Don't assume all patients are straight.
Don't assume they have a support network. Don't assume ANYTHING”.
“We
can do better than that. We must do better than that. The voices of the
LGBT survivors must be heard and their needs addressed with the respect
offered other people with breast cancer.”, said Dr. Smith-Stoner.
Further results of the study will be released soon. In the meantime,
Margolies and Smith-Stoner ask that, beginning in October, healthcare
workers ASK all their patients about sexual orientation, RESPECT the
unique needs of lesbian and transgender survivors, and INVITE their
support system into treatment.
“As
we begin breast cancer awareness month we ask that you Pause before you
Pink. Don’t forget the needs of lesbian and transgender breast cancer
survivors”, said Margolies.
The
study was funded by The DAISY Foundation’s Patrick J. Barnes Grant for
Nursing Research and Evidence-Based Practice Projects.
For
more information:
National LGBT Cancer Network
Liz Margolies, Executive Director
212-675-2633
liz@cancer-network.org
Marilyn Smith-Stoner
Professor of Nursing
California Sate University, San Bernardino
909-537-5448
mstoner@csusb.edu
LGBT CANCER SCREENING
New Resource
Lists LGBT Friendly Centers
May 2012
A new resource has been
published that lists
over 400 LGBT friendly
cancer screening centers
nationwide.
According to the
National LGBT Cancer
Network, this resource
has
removed many of the
barriers to LGBT cancer
screenings
No one looks forward to
being screened for
cancer. It's scary,
uncomfortable and
pricey. But, for
those in the LGBT
community the list of
barriers to cancer
screening is even
longer, including...
Low rates of health
insurance coverage...
Feared discrimination...
Previous negative
experiences...
Provider ignorance about
LGBT health needs.
The National LGBT Cancer
Network's mission is to
improve the lives of
LGBT people with cancer
and those at risk. We
educate the LGBT
community, train
healthcare providers and
advocate for LGBT
inclusion in national
cancer organizations,
research and the media.
With a generous grant
from the Palette Fund,
the National LGBT Cancer
Network, headed up by
Executive Director Liz
Margolies, spent the
last year investigating
cancer screening
facilities across the
country, seeking free or
affordable places where
LGBT people would be
safe and respected. In
all, they found over 400
LGBT-friendly
facilities, covering
nearly all 50 states,
that offer mammograms,
cervical paps,
colonoscopies, anal paps
and prostate
screenings. They found
many places where you
don't need health
insurance and, if you
do, your body need not
match the gender on your
card. In some places,
you don't have to have
any legal documentation
at all.
The directory can be
found on the National
LGBT Cancer Network
website. It is the
newest addition to their
Take Care of That
Body campaign.
Most listings in the
directory include the
name, phone number and
email of a staff person
at the facility. These
people have agreed to
personally shepherd you
through the screening
process. If, for
example, you are a
transgender man seeking
a mammogram, the guide
will make sure you are
not given a pink robe or
asked to sit in the
women's waiting room.
These guides are
committed to making the
experience a decent one
for all LGBT persons.
If the facility has no
designated guide, it is
because ALL of the staff
meets the high standard
for LGBT cultural
competence.
The yellow highlighted
facilities in our
directory are places
that have shown an
exceptional commitment
to transgender health.
But, you can be
confident that every
single place listed
satisfies the rigorous
criteria of the National
LGBT Cancer Network.
E-Mail:
staff@cancer-network.org
LINKS:
National LGBT Cancer
Network
Huffington Post:
Breaking Down Barriers
with Resources for
Accessible Care
LGBT HEALTH ISSUES
Medical Concerns
Lesbian, gay,
bisexual, and transgender (LGBT) individuals are
as diverse as the general population in terms of
race, ethnicity, age, religion, education,
income, and family history. A number of health
concerns are unique to or shared by the LGBT
community, however, including an increased risk
of certain cancers, infectious and
sexually transmitted diseases
(STDs), and
mental health disorders;
issues relating to
nutrition
and weight, tobacco use, and substance abuse;
and discrimination by health care and insurance
providers.
The definitions of
different sexual identities have shifted over
the years, as have the perceptions and
stereo-types of the general population. Because
of the wide range of behaviors and identities
that exist in the LGBT community, it is
difficult to develop an inclusive definition. It
is generally accepted, however, that gay men and
lesbians are sexually attracted to or
participate in sexual behaviors with individuals
of the same gender, while bisexual men and women
are sexually attracted to or participate in
sexual behaviors with individuals of both
genders. Transgender individuals live part- or
full-time in a gender role opposite to their
genetic sex.
It is estimated
that approximately 2.8% of men and1.4% of women
identify as being gay, lesbian, or bisexual
while 9.1% of men and 4.3% of women have
participated in sexual behavior with someone of
the same gender at least once. The true extent
of the transgender community has not been well
researched in the United States; one study from
the Netherlands in 1993 found that one in 11,900
males and one in 30,400
females are transgender.
LINKS:
LGBT and Public Health
National Coalition for LGBT Health
CDC: LGBT Health
LGBT Health Communities
HRC: List of National LGBT Health Organizations
Gay Health
Gay &
Lesbian Health Association
LGBT Heart
Reporting on Health: LGBT Health
Issues
NAMI: LGBT Mental Health Resources
Healthline: Gay and Lesbian Health
Why do Gay People Smoke More than Straight People?
LGBT Health Awareness Campaign
LGBT HEALTH ISSUES
Sexual Concerns
There are a number
of issues that arise when trying to define
sexual orientation. Many gay men and lesbians
have participated in or continue to participate
in sexual activities with members of the
opposite sex but choose not to identify as
heterosexuals or bisexuals. Others have never
participated in sexual activities at all yet
still identify as gay, lesbian, or bisexual.
Some men and women identifying as bisexuals are
in long-term, monogamous relationships with
individuals of the same or opposite sex.
Male-to-female (MTF) or female-to-male (FTM)
transgender individuals may or may not identify
themselves as gay or lesbian.
The implications
of these identity issues are far-reaching.
Misdiagnoses or improper medical recommendations
might come from health care providers who have
mistakenly assumed sexual behaviors or risks
from the patient's stated identity. For example,
a provider might incorrectly assume that a
lesbian patient has never had sexual intercourse
with a male and therefore would not have
contracted STDs not normally transmitted by
sexual activities between women. It has been
difficult to closely estimate the numbers of
LGBT individuals in the United States because of
varying definitions. Likewise, the statistics in
medical or social studies and surveys on LGBT
issues might vary widely depending on what
definitions were provided for the respondents.
Because of this, many researchers have opted for
the more inclusive terms of "men who have sex
with men" (MSM) and "women who have sex with
women" (WSW) to categorize gay, lesbian, and
bisexual respondents.
LGBT HEALTH & COMING OUT
Revealing
Sexual Identity
Many LGBT individuals
have difficulty
revealing their sexual
identity ("coming out")
to their health care
providers. They may fear
discrimination from
providers or believe
that their
confidentiality might be
breached. In some cases
health care workers have
been poorly trained to
address the needs of
LGBT individuals or have
difficulty communicating
with their LGBT patient
(one study
indicated that 40% of
physicians are
uncomfortable providing
care for gay or lesbian
patients). In addition,
many questions posed in
questionnaires or
examinations are
heterosexually biased
(e.g. asking a lesbian
which
birth
control
methods she uses or a
gay man if he is
married, single, or
divorced).
Other reasons why LGBT
individuals are often
hesitant to share their
sexual identity are more
logistical. Many
insurance companies deny
benefits to long-term
partners on the basis
that they are not
married. LGBT patients
may have inadequate
access to health care,
either because they live
in a remote rural area
or in the crowded inner
city. Some same-sex
partners encounter
discrimination in
hospitals and clinics
when they are denied the
rights usually given to
spouses of a patient
such as visiting, making
medical decisions, and
participating in
consultations with
physicians.
LGBT MEDICAL ISSUES
Risk Factors
Some of the health
concerns and risk
factors that are
relevant to LBGT
individuals may be
shared by the general
population, while others
are more specific to the
LGBT community, and
still others are
specific to different
subgroups of LGBT
individuals. These
health concerns may be
grouped into the
following areas of
concern:
Sexual behavior issues:
STDs such as human
immunodeficiency
virus (HIV)
and acquired immune
deficiency syndrome (AIDS),
hepatitis A virus
(HAV), hepatitis B
virus (HBV),
bacterial vaginosis,
gonorrhea,
chlamydia,
and
genital
warts
(human papillomavirus or
HPV); anal, ovarian, and
cervical cancer.
Cultural issues: body
image,
nutrition,
weight, and
eating
disorders;
drug and
alcohol
abuse;
tobacco use; parenting
andfamily
planning.
Discrimination issues:
inadequate medical care;
harassment at work,
school, or home;
difficulty in obtaining
housing, insurance
coverage, or child
custody; violence.
Sexual identity issues:
conflicts with family,
friends, and work mates;
psychological issues
such as
anxiety,
depression, and
suicide;
economic hardship.
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